Say hello to the Beacon team!

Our team continues to thrive due to the generosity and support of the rare disease community. We treasure working with patient groups and collaborators to break down barriers and transform the patient experience. It is extremely rewarding to help patient groups form, grow and professionalise, so no one has to face their rare journey alone.

Our team prides itself on delivering high-quality training, events and projects. We are proud to say that our team has over 18 years of combined experience working in this space. Our team adheres to Beacon’s founding values by ensuring that every project, training or event is:

 

  • Patient-Centred
  • Innovative
  • Impact-driven
  • Collaborative
  • Positive
  • Personal

Meet the team below and email us to say hello!

Rick Thompson
CEO

Email: rick@rarebeacon.org

Mary Rose Roberts
Chief Operating Officer (COO)

Email: maryrose@rarebeacon.org

Laura Thompson-Harper
Senior Corporate Fundraiser

Email: laura@rarebeacon.org

Philippa (Phil) Norman
Senior Projects Officer

Email: philippa@rarebeacon.org

Blayne Baker
Marketing & Engagement Manager

Email: blayne@rarebeacon.org

Hannah Harvey
Senior Projects Officer

Email: hannah@rarebeacon.org

Faith Walpole
Fundraising Officer

Email: faith@rarebeacon.org

William (Will) May
Administrative Officer

Email: will@rarebeacon.org

Evelyn (Eve) Scott
Senior Scientific Projects Officer

Email: eve@rarebeacon.org

Chloe Eyre
Scientific Projects Officer

Email: chloe@rarebeacon.org