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Become a trustee and support the rare disease community

Become a trustee and support the rare disease community

by Beacon Rebrand

We are recruiting new voluntary trustees to help us in our growth as a charity.

Recent Posts

  • Josiah Strong: A Journey Through our Medical Odyssey
  • Webinar: Help! We need to diversify our board
  • Webinar: Managing expectations of advanced therapies
  • Three years weren’t long enough with you, Phil!
  • My rare journey with Hao Fountain Syndrome

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