by Beacon Rebrand | Patient stories
This week’s blog is written by Dan Shockley, a retired U.S Navy Veteran who served in Operation’s Desert Storm, Endurance and Iraqi Freedom. In 2012, at the age of 51, Dan received a diagnosis of a rare gene mutation, attenuated familial adenomatous polyposis (AFAP). This life-changing event spurred Dan on to become a rare disease expert and colon-cancer ambassador, sharing his experiences in an effort to encourage and inspire fellow rare disease patients.
by Beacon Rebrand | Patient stories, Rare disease world
This week’s blog is written by Ashley Clarke. Ashley takes us back to when her dad was first diagnosed with Huntington’s Disease (HD), and reflects on her journey from daughter and carer to HD activist and lifestyle blogger. See how she’s living life in HD!
by Beacon Rebrand | Rare disease world
Rick is building a website Lots of words and exciting things in my...
by Beacon Rebrand | Findacure events
Rick is building a website Lots of words and exciting things in my...
by Beacon Rebrand | Meet the team
Rick is building a website Lots of words and exciting things in my...