Our supporters

Building a united rare disease community with patient groups at its heart takes care, commitment and collaboration. To break the isolation felt by those living with a rare disease, stakeholders must come together for the benefit of all rare conditions. It is our belief that working across sectors to improve the rare disease landscape is key to the community’s success.

We would like to say a massive thank you to the following organisations for supporting our trainings, community projects and events. We are incredibly grateful for your time and support. Thank you for valuing rare disease, our work and patient groups. Your support continues to transform and empower rare lives.

Our supporters

Building a united rare disease community with patient groups at its heart takes care, commitment and collaboration. To break the isolation felt by those living with a rare disease, stakeholders must come together for the benefit of all rare conditions. It is our belief that working across sectors to improve the rare disease landscape is key to the community’s success.

We would like to say a massive thank you to the following organisations for supporting our trainings, community projects and events. We are incredibly grateful for your time and support. Thank you for valuing rare disease, our work and patient groups. Your support continues to transform and empower rare lives.