Read our case studies to see what we can accomplish together!

 

Read our case studies to see what we can accomplish together!

 

Our patient group trainings, rare community projects and drug repurposing initiatives transcend sectors and borders. We’ve helped countless rare disease patient groups reach their advocacy goals and overcome diverse challenges.

Our patient group trainings, rare community projects and drug repurposing initiatives transcend sectors and borders. We’ve helped countless rare disease patient groups reach their advocacy goals and overcome diverse challenges. We’ve collaborated with stakeholders to improve the rare disease landscape for the benefit of all rare conditions. We are ensuring that no one faces their rare journey alone.

Don’t just take our word for it, though! Read our case studies and testimonials to hear what our patient groups and collaborators have to say about our work. Our beneficiaries and collaborators know us best. Their achievements are our achievements. We help each other to succeed so that we can shine one, collective light on rare disease. Together, the rare community is stronger than the sum of its parts.

 

 

Case studies

Testimonials

See what our patient group leaders and partners have to say about Beacon and our work.

Ataxia and Me testimonial

Ataxia and Me testimonial

“It has been fantastic to be in this rare disease family knowing you are not alone in this rare disease community.”

Metabolic Support UK testimonial

Metabolic Support UK testimonial

“As we elevate our individual support, empowerment, advocacy, and insight offers, we hope to partner with Beacon on future campaigns…”

Pitt Hopkins UK testimonial

Pitt Hopkins UK testimonial

“There has been advice about how to become a charity, how to fundraise, how to work with researchers. They think of everything!”

Behçet’s UK testimonial

Behçet’s UK testimonial

“Without the help of Beacon I could not have achieved what I have as chair of Behçet’s UK this past 4-years.”

FOP Friends testimonial

FOP Friends testimonial

Beacon’s programmes, trainings, webinars, support, student voice prize, connections, and of course RareChat sessions, have all been fantastic.

If you’d like a case study of your organisation featured on our website, please email our Marketing and Engagement Manager, Blayne. Get in touch today!

Our patient group trainings, rare community projects and drug repurposing initiatives transcend sectors and borders. We’ve helped countless rare disease patient groups reach their advocacy goals and overcome diverse challenges. We’ve collaborated with stakeholders to improve the rare disease landscape for the benefit of all rare conditions. We are ensuring that no one faces their rare journey alone.

Don’t just take our word for it, though! Read our case studies and testimonials to hear what our patient groups and collaborators have to say about our work. Our beneficiaries and collaborators know us best. Their achievements are our achievements. We help each other to succeed so that we can shine one, collective light on rare disease. Together, the rare community is stronger than the sum of its parts.

 

 

Case studies

Testimonials

See what our patient group leaders and partners have to say about Beacon and our work.

Ataxia and Me testimonial

Ataxia and Me testimonial

“It has been fantastic to be in this rare disease family knowing you are not alone in this rare disease community.”

Metabolic Support UK testimonial

Metabolic Support UK testimonial

“As we elevate our individual support, empowerment, advocacy, and insight offers, we hope to partner with Beacon on future campaigns…”

Pitt Hopkins UK testimonial

Pitt Hopkins UK testimonial

“There has been advice about how to become a charity, how to fundraise, how to work with researchers. They think of everything!”

Behçet’s UK testimonial

Behçet’s UK testimonial

“Without the help of Beacon I could not have achieved what I have as chair of Behçet’s UK this past 4-years.”

FOP Friends testimonial

FOP Friends testimonial

Beacon’s programmes, trainings, webinars, support, student voice prize, connections, and of course RareChat sessions, have all been fantastic.

If you’d like a case study of your organisation featured on our website, please email our Marketing and Engagement Manager, Blayne. Get in touch today!