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About Us
Our Journey
Who we help
The Beacon team
Our Commitment
Impact Reports
Press
Contact Us
Rare Diseases
What are rare diseases?
Why patient groups matter
Why we use the term “rare disease”
Patient Group Training
Patient Group Training
Guided Programmes
Recruiting a Rare Board
Resources Hub
Rare Community
Community Building
Rare Disease Showcase
Drug Repurposing Conference
The Student Voice Prize
Rarely Heard
Case Studies
Research
Rare Disease Research
Drug Repurposing
MCDS-Therapy
Social impact bond
Support Us
Why Support Us?
Individuals
Volunteer
Corporates and Trusts
Our Supporters
Donate
Keep in touch
How to keep in touch
News
Blog
Events
Subscribe to Newsletter
Published work
Share Your Story
Events
Rare Chat | Patient group experiences in research and trial design
by
Beacon Rebrand
|
Sep 22, 2021
