New interactive webinar announced from Realise Advocacy: ‘Navigating HTA’
Findacure is delighted to announce an exciting new partnership with Realise Advocacy!
Have your say on what the UK Rare Disease Framework Action Plan should include
Join us on 20th July from 10am – 12pm, as we sit down with NHS England and NHS Improvement for a two-hour discussion on the UK Rare Disease Framework Action Plan. Register now to have your say!
The 2020 Student Voice Prize winning essays have been published!
The 2020 Student Voice Prize winning essays have been published! Read Catriona Chaplin’s overall winning essay in the Orphanet Journal of Rare Diseases or view Caitlyn, Molly and Sanjana’s runner-up essays on BioMed Central’s blog. Congratulations again to The 2020 Student Voice Prize winners!
We’re featured in Health Awareness and Mediaplanet’s 2021 Rare Diseases campaign!
We’re featured in Health Awareness and Mediaplanet’s 2021 Rare Diseases campaign! Read our CEO’s article, Rare disease patient groups provide hope to isolated communities, in full now and be sure to pick up a copy of the Guardian newspaper to read the entire campaign in print.
The new UK Rare Disease Framework is here!
If you haven’t had a chance to read the new UK Rare Disease Framework in full, we’ve summarised its contents for you. Learn the new UK Rare Disease Framework’s four key priorities and five underpinning themes now!