This week’s blog is written by our office colleague and friend, Juliet!
Juliet is running the GEAR 10K in support of Beacon.
Learn more and donate to her fundraiser!
Hi! My name is Juliet, and I am fundraising for Beacon by running GEAR 10K in Kings Lynn on 30th April.
Why are you fundraising for Beacon?
I have known the Beacon team for years. My first job after university was in the same office as Beacon (which was known as Findacure at the time). I have so many fun memories with the Beacon team and have enjoyed getting to know their new members of staff.
I have seen first-hand how hardworking the Beacon team is and the amazing impact they have had on patient groups. I have attended many of their fantastic events across the UK, my favourite being their rare disease drug repurposing conference. I used to work for The AKU Society, a rare disease charity that supports those with Alkaptonuria (AKU). Having a rare disease is an isolating experience and rare disease patient groups are vital for providing support and a community for those with a rare disease.
I hope I can raise funds to help Beacon continue its rare disease patient group training and create a rare disease community.
Have you had previous running experience?
During the COVID pandemic, I started the ‘Couch to 5k’ app and did the NHS 5k challenge in April 2020. Since then, I have been running every week and during the third UK lockdown, I ran two 10ks. However, I have not participated in a race before and am excited to be in a race environment – hopefully I can beat my Personal Best (PB)!
How are you fundraising for Beacon?
I have set up a fundraising page on Give as you Live to raise funds for Beacon – I appreciate any donation!
Every penny raised will go towards patient group training, creating a rare community, and helping rare disease research.
