RareChat | Patient group experiences of collaborating with industry

Collaboration between patient groups and industry is critical to be able to drive research into your rare condition, develop treatments and gather data. However, navigating these partnerships, whether it be with pharmaceutical companies, CROs or other industry representatives, can be complicated and overwhelming.

In this RareChat, we would like to explore your experiences of working with industry. We will discuss what you are looking for from industry representatives and what they look for in patient groups to form successful collaborations.

If you are looking to connect with industry representatives, have done so recently or would like to put your patient group in a strong position to be able to form successful partnerships, this is your chance to share your thoughts, ideas and concerns with like-minded individuals from the rare community.

Join us to discuss:

• What are the challenges of collaborating with industry?

• How can you make your organisation an attractive partner for the pharmaceutical industry?

• What are your positive and negative experiences of collaborating with industry?

• How have you identified and connected with partners?

This RareChat will give you the opportunity to share ideas and get inspiration from your fellow patient group leaders, spaces are limited so claim your space now!