by Beacon | Blog, Patient stories|Rare disease world
This week’s blog was written by Makenzie Cabrera, mom to Josiah J Cabrera who was born in March of 2021 and lives with the ultra-rare condition, Familial Cold Autoinflammatory Syndrome. Makenzie shares her family’s rare journey with Josiah!
by Beacon | Blog
Our Project Manager, Philippa (Phil) has officially left Beacon to pursue her next chapter: teaching English abroad! Read Phil’s leaving blog now and wish her well on her adventures!
by Beacon | Blog
Meet Cailin, who lives with Hao Fountain Syndrome. Cailin shares her rare journey to help others like her not feel alone. Read her blog!
by Beacon | Blog
Apply for our charity vacancies! See why the Beacon for rare diseases team loves working at our charity and apply to join us by 9am on the 19th April. Good luck!
by Beacon | Blog
Our rare diseases charity in Cambridge, UK rebranded from Findacure to Beacon for rare diseases over a year ago. View the impact of our rebrand!