Press information

 

Thank you for visiting our press information page!

We welcome media requests that help us to reach new audiences and further our work. We’ve provided a variety of press resources below to make finding the information you need to craft an engaging story quick and hassle-free.

We’re happy to provide assets, high-resolution photos, headshots and interviews upon request. Simply email our CEO, Dr Rick Thompson at rick@rarebeacon.org and our Marketing and Engagement Manager, Blayne Baker at blayne@rarebeacon.org to ask.

They’ll be more than happy to assist you!

 

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Rick has written articles for major rare disease campaigns featured in The Guardian, New Scientist and The Times, amongst numerous digital outlets. He is happy to discuss the rare disease world, but has a particular interest in patient engagement, patient group development and drug repurposing.

Blayne looks after all of Beacon’s online media and social media channels. She has also written a featured article in Pharmafile, and is keen to write about the patient experience of rare disease and advocacy. She is happy to work on collaborative pieces about the rare disease world.

Rick has written articles for major rare disease campaigns featured in The Guardian, New Scientist and The Times, amongst numerous digital outlets. He is happy to discuss the rare disease world, but has a particular interest in patient engagement, patient group development and drug repurposing.

Blayne looks after all of Beacon’s online media and social media channels. She has also written a featured article in Pharmafile, and is keen to write about the patient experience of rare disease and advocacy. She is happy to work on collaborative pieces about the rare disease world.

Press information

 

Thank you for visiting our press information page!

We welcome media requests that help us to reach new audiences and further our work. We’ve provided a variety of press resources below to make finding the information you need to craft an engaging story quick and hassle-free.

We’re happy to provide assets, high-resolution photos, headshots and interviews upon request. Simply email our CEO, Dr Rick Thompson at rick@rarebeacon.org and our Marketing and Engagement Manager, Blayne Baker at blayne@rarebeacon.org to ask.

They’ll be more than happy to assist you!

Read more