
Juliet is running a 10k for Beacon!
Our office colleague and friend, Juliet is running the GEAR 10K in support of our rare diseases charity, Beacon for rare diseases. Donate to her run!
Our office colleague and friend, Juliet is running the GEAR 10K in support of our rare diseases charity, Beacon for rare diseases. Donate to her run!
This week’s blog is written by Tracey Harney, who is the proud mum to Isobelle! Tracey shares her rare journey and the chance encounter that led to Isobelle receiving a diagnosis. Spoiler alert: You know the nurse Tracey met!
This week’s blog is written by Alex Gaudlap! Alex’s firstborn son was diagnosed with the rare condition, VAMP2. She shares her rare journey to help others living with VAMP2 and those living with a rare disease. You can follow Alex’s journey on her website, Instagram and Facebook!