
Speaker Spotlight – Drug Repurposing for Rare Diseases 2020
Rick is building a website Lots of words and exciting things in my...
Speaker Spotlight – Drug Repurposing for Rare Diseases 2020
With our annual conference, Drug Repurposing for Rare Diseases, just over a week away, things are getting busy in the office. We are preparing delegate packs, writing talks, and chatting to our venue and speakers to make sure the event is our best ever. Earlier this...
Leading a rare patient group
Our latest workshop on the 22nd January focused on the topic of leadership within a rare patient group. We all know that leadership is a skill we should be very aware of and try to be good at but sometimes it’s hard to know how to start thinking about your own leadership skills. In a patient group context when employees and volunteers are often busy with other things, leaders don’t always have time to reflect on and improve their practice.